Effects of Neonatal Palliative Care Consultation on the Stress of Parents of Patients in the Neonatal Intensive Care Unit

Service: Trial Number:
069-12
Principal Investigator:
Annie R. Petteys
Conducted at:
Miller Children‘s Hospital Long Beach
Currently enrolling additional patients:
Yes

The problem under investigation in this study is stress experienced by families who have an infant in the NICU. The purpose of the study is to determine whether palliative care consultation affects the stress experiences of parents of NICU patients. Participants will be assigned to the “Standard NICU Care” group or the “Palliative Care” group based upon whether or not their infant has a medical order to receive palliative care consultation. All study participants will receive standard NICU care. Palliative care group participants will receive standard NICU care as well as consultation from palliative care services. (Palliative care consultation includes an additional weekly physical assessment of the infant by a palliative care registered nurse who will consult with the NICU medical team and will also be in contact with the infant’s parents on a weekly basis throughout the time that their infant meets the NICU criteria to receive palliative care consultation). All study participants who meet inclusion criteria, after providing informed consent to participate, will be asked to complete several written survey documents (including a general data or demographic form, two different stress measurement scales, and an evaluation form) at three separate times during study participation. During the course of this study, the researcher will perform chart reviews to obtain information regarding the infants of study participants. Data gleaned from infant chart review and from participant survey responses will provide information for the research study. All information will remain confidential.

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