The American Association for Cardiovascular and Pulmonary Rehabilitation (AACVPR) Outpatient Cardiac Rehabilitation Outcomes Registry

Service: Trial Number:
114-12
Principal Investigator: Conducted at:
Long Beach Memorial
Currently enrolling additional patients:
Yes

Outpatient cardiac rehabilitation (CR) is an under-utilized service with less than 20% of eligible patients participating. Although recognized as a standard of care by the American College of Cardiology (ACC), American Heart Association (AHA), AACVPR (American Association of Cardiovascular and Pulmonary Rehabilitation) and the American College of Chest Physicians (ACCP), CR is not well integrated into standard medical care for patients with cardiovascular diseases even with strong evidence to indicate improved clinical, behavioral, and health outcomes. AACVPR is a professional society of over 2500 members dedicated to the advancement of cardiovascular and pulmonary rehabilitation services for patients with heart, vascular and lung disease and the support of professionals working in these programs. AACVPR has advocated for the collection and management of patient-centered outcomes. AACVPR is proposing to develop an outpatient CR outcomes registry (“the Registry”). Patient demographic and health information will be collected and submitted to the Registry that includes the patients’ Medical Record Number, age, gender, race, last 4 digits of social security number, birth date and ethnicity. This demographic information will be used to link with Medicare and other data registry that track mortality, morbidly and hospital readmission data. De-identified registry information will be available to member institutions and researchers for outcomes research, benchmarking, and program improvement analysis. The data registry will be used by the Long Beach Memorial Medical Center Cardiac Rehab Program for benchmarking and performance improvement. The Registry is owned by the AACVPR and is stored on a secured server at SmithBucklin an AACVPR business management group. The AACVPR meets all HIPAA requirements for safeguarding data.

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